"Tonight's the night!"

Over a year ago, I read about a dad who shaved his head in memory of his daughter. I remember casually mentioning to a few students that I wanted to shave my head, too. Sort of a test run. Just to see how they would react. And I heard, "I'll pay you NOT to shave your head!"

I guess they thought that would sway me against it. But it actually convinced me that I HAD to do it. People react when women shave their heads.

And now? In less than 12 hours, I'll be bald. My husband, 14yo niece, friends and even my hairdresser are running in the 5k. My husband is going to shave his head with me!! (Think it's not a big deal for a man to shave his head? You don't know Sandy. :)

And in the past month, we have raised over $3000 for St. Jude. That's more than triple my original goal! I'm blown away by everyone's generosity!! A high school friend just cut 17" off her hair to donate to Locks of Love to make wigs for children undergoing chemotherapy. And The Huntsville Times printed an article this morning which will reach beyond our circle of [amazing] family and friends.

So why are we doing this? Well, no one can tell you why St. Jude's is incredible better than a cancer parent.

No one ever thinks that their child will be the one- the one diagnosed with an illness that could take their life before it has begun. In our busy lives, we don't often pause and think about how life, as we know it, can change with one ugly word-cancer. Noone is ever fully prepared to watch their child get stuck with needles or have to stick them themselves or intentionally have poison put in their child's body or watch their child lose their hair or sit in a hospital for days upon days. We weren't. But in those moments, those awful moments...

We had St. Jude. The doctors and nurses gave us hope. They made us feel as comfortable as we could. Everyone went out of their way to make sure that our whole family was provided for- housing, food, transportation, prescriptions, school, and, most importantly, medical care were taken care of for us. Our main concern was our child's health, as it should be. And a bill? We have never seen one. What our insurance doesn't pay, st. Jude covers. And that's not all. These doctors and nurses became our family. The other families became our family. These people really love their jobs and they love these kids. Not only are they treating our kids but they are working tirelessly to find the cure. In the words of our son's doctor, Dr. Wayne Furman, "I look forward to the day that I am called and told not to come to work. A cure has been found." St. Jude has provided life for our son and hope for us and many, many others.--Melissa Thomason

I might cry tonight. 'Cause that's what I do. [I come by it honest. My mom called me this morning after reading the Huntsville Times article...crying. LOVE that woman.] And I won't deny that some of the tears might be because I hate the way I look. But that's not why I'm tearing up now. Those tears are for the children who fight this terrible disease. And some of them die from it. Some of them lose their hair and NEVER grow it back, because they don't survive. And there are SO, SO many of them.

I've posted about some of them, and I'll continue to post about more. And a lot of those posts will be about Evan. Okay, now I'm crying already... I'll have to write more about him another day. But for now? Suffice it to say, every "cancer child" is a reason to support St. Jude.

But Evan? Evan is my first reason. I love you, buddy.

Evan, my favorite St. Jude Dude

If it weren't for Evan, I probably wouldn't know much about childhood cancer. I might catch a St. Jude telethon on TV, or skim through an article in a magazine, but my life would pretty much be the same whether I knew much about childhood cancer or not. But now? I know a kid with cancer.

And he's an incredible kid. I love this video of Evan talking about St. Jude and singing one of the songs he wrote! Amazing, isn't he?

Evan's mother and I "go way back" ;) Back to the days when we wore our hair like this.
That's Melissa with the Cabbage Patch doll on her back (um, why, Mike??) and me in the center. See? My hair was so big it covered my whole face! Anyway...

We kept in touch after high school, and helped plan our 10 year reunion, but didn't get to see each other much other than that. Then, in 2006, she sent an email that just didn't even seem real. She was asking for prayers for her five-year-old son, because he had been diagnosed with cancer. I had the cliche'd "but this only happens to other people" moment. And realized what I already knew but had never had to really face: Kids get cancer, too.

Here's how Melissa tells Evan's story:

In the summer of 2006, Evan started showing early symptoms that something was wrong. He began to complain of pain in various areas of his body - his back, his legs, his arms, etc. He became very "crabby" and started sleeping a good deal. We ignored the symptoms at first, chalking them up to growing pains or attention seeking. Many times, the pains would conveniently come around the same time that we would ask him to do a chore or do something he didn't want to do. Throughout the summer, however, the pains became more consistent and worse. By mid-July, he was unable to get up from the floor without crawling over to furniture to pull himself up. He limped terribly and could not perform simple tasks. Alarmed, we visited our pediatrician.

After a blood test, they determined that he was severely anemic and was having muscle spasms. After several days of iron supplements and red meat, however, he did not seem to improve, but get worse. Fortunately, our pediatrician listened and scheduled scans at our local hospital. Immediately, during a bone scan, numerous tumors were found. By the end of the evening, Evan had been diagnosed with stage IV neuroblastoma, a cancer of the peripheral nervous system. Although this cancer is fairly common, it accounts for 15% of deaths from childhood cancer. The survival rate for this type of cancer is low - 30% over 5 years. We went home, heartbroken, searching for treatments that would best benefit our son. After a full night of research, we felt that St. Jude Children's Research Hospital in Memphis, TN would provide Evan the best care and the most innovative treatments in hopes of saving his life. After a referral from our pediatrician, we were in Memphis and in the care of the wonderful doctors and nurses in less than 48 hours of diagnosis.

Evan entered into a protocol consisting of two rounds of a clinical trial drug, then on to more extensive chemotherapies. He lost his hair, lost a lot of weight, and spent countless nights in the hospital. Evan had a surgery in October of 2006 to remove the primary tumor located in the the abdomen, however, resection was unsuccessful. Evan's tumor encased vital arteries that would have been even more detrimental to his health. He underwent nine rounds of what we called "the tough stuff", as well as a stem cell harvest, in hopes to enter a stem cell transplant, using his own cleaned stem cells.

We never made it to transplant. After the chemotherapy portion of his protocol was complete, we discovered that Evan's cancer had not budged. It was ALL still there. So, we went on for three more rounds of extensive chemotherapy. Again, we discovered, the cancer had not budged, but changed. Many of the cells that were pulled from his bone marrow had mutated to a benign form. This was encouraging, but doctors were not sure what to do with this information.

They did not feel that Evan would survive the disease, but because he was feeling well, they felt that a new clinical trial that had recently opened would be the best course of action. We began a new drug that would be administered once a week that was designed to kill the proteins that the cancer cells feed off of.

Two years later, we are still on the same drug. The drug does not make Evan sick. His hair has grown back, he has gained weight, grown taller, goes to school, participates in sports and other extracurricular activities and, except for a trip to St. Jude once a week for his doctor visit and chemotherapy, he is a normal, now eight year old boy.

It's incredible to see how much Evan has grown since his diagnosis. He has lived with cancer for THREE years. And we just pray for many, many, many, many more.

Don't forget to donate to St. Jude. Or run the 5k! Or go bald! Or all 3!